ICP Care Team Volunteer

Amparo Healey Board Member
Tracey Remy
Support Group Moderator
Amparo Healey Board Member
Support Group Moderator
Tracey Remy

My name is Tracey and I live in Orange, VA. I am the mom of Evelyn Alexandra and Everett Wayne, he is the center of my universe and my one true love.

Trying to think back on my experience with Cholestasis can be painful to revisit, but I also enjoy sharing my story and keeping my daughter’s memory alive. I was diagnosed with Cholestasis at 34 weeks in my first pregnancy with my daughter. The pregnancy was unexpected, and I was terrified, but I had so much support from my friends, family, and spouse. We all could not wait to meet her. From the moment I felt her first kick I knew she was something special. She was strong and active, always up to something wiggling around. I first remember my palms beginning to itch and did not think much of it, then it started on the bottoms of my feet. It got worse and worse within a matter of a day to where I could not sleep. I was itching everywhere and so badly I was leaving marks on my body. If I could have itched my eyeballs I would have. I googled itching while pregnant and there was a mention of Cholestasis, but nowhere did I read of what the outcome could be and what too high of bile in the blood stream could cause. I knew I was miserable so I made an appointment to see my OB. They did not seem to be very concerned, so I did not worry as I trusted my doctors. They told me I needed to get bloodwork done to confirm what was going on and in the meantime put me on medication. It was almost a week later when I received the results and my levels were over 100. The series of what happened next is a bit of a blur. I remember getting an amniocentesis and the doctor said everything looked fine. I went home that night and began spotting so I went to the ER. They put me on monitors for a few hours and said everything looked fine, but to just monitor her movements. That night I could not sleep from itching so badly, I went and laid on the couch so I would not wake my husband but laid for hours itching. The one thing that will always stick with me is how hard she was kicking me over and over, almost as if she was trying to tell me something. I finally managed to fall asleep from pure exhaustion, but when I woke up I knew something was wrong. My very active girl had not moved all morning. I told my husband and he tried to feed me some ice cream hoping the cold would get her moving, but there was nothing. We went back to the hospital where they did an ultrasound and it was very clear on the picture that there was no heartbeat. It was one of the most difficult things I have ever had to hear in my life, at 35 weeks, my daughter had passed away.

When I found out I was pregnant with my son I was recommended to a family friend at her practice and they monitored me very closely. At first I was getting blood tests every few weeks and then the further I became it was every week. Like clockwork, at 34 weeks my levels had spiked. I was in a CNA program at the time and had my final exam the following day when I received the call from my doctor that she wasn’t taking any chances and I was scheduled to deliver that day. Everything was successful and my son was born safely and healthy.

When I lost my daughter, I could not even fathom what had just happen and I did not have the resources to help me understand or properly grieve. I wish I had known about this organization at that time because I do feel it could have really helped me in such a dark time. I am so very excited and honored I get to be a part of helping spread awareness and educating others and myself.