Tag: Intrahepatic Cholestasis of Pregnancy

Mi Experiencia de embarazo ICP – My ICP Pregnancy Experience

Mi Experiencia de embarazado ICP

Soy mamá primeriza, mi hijo nació el 23 de septiembre del 2019. Mi embarazo comenzó bien, sin complicaciones hasta que llegamos a la semana 32. Recuerdo bien el momento en que comencé a sufrir de picazón intensa en mi cuero cabelludo, mis manos, entre mis dedos y en ambas piernas. Me rasguñaba la piel en… Read more »

June is ICP Awareness Month

June is Intrahepatic Cholestasis of Pregnancy Awareness Month

June is Intrahepatic Cholestasis of Pregnancy Awareness Month – a month where we honor and remember those we have lost and raise awareness by educating as many mothers and healthcare professionals as possible.  ICP is a group of disorders specific to pregnancy that cause bile acids to build up in the blood creating a high… Read more »

Concerns with 2019 study of efficacy of Ursodeoxycholic Acid

CONCERNS WITH 2019 STUDY OF EFFICACY OF URSODEOXYCHOLIC ACID

A study published in the Lancet in August of 2019 compared Ursodeoxycholic Acid to placebo in women with intrahepatic cholestasis of pregnancy. This study failed to find a significant difference between the study group and the control group. Overall, the study was well-designed. However, there was one important issue that may have profoundly impacted the… Read more »

Awareness Initiatives for Cholestasis of Pregnancy

ICP Awareness Initiatives Blog

We often hear from members of the ICP Care support groups that “someone really needs to do something”. Here’s what many people don’t know: there are many “somethings” happening around the country for Intrahepatic Cholestasis of Pregnancy awareness and education. The local Wisconsin/Minnesota group had one such “something” September 28, 2019. Our fifth annual “Agility… Read more »

Interpretations of the 2019 ICP meta-analysis

INTERPRETATIONS OF THE 2019 ICP META-ANALYSIS

In February of 2019, a groundbreaking study was published regarding Intrahepatic Cholestasis of Pregnancy (ICP), which found that under modern management practices the risk of stillbirth is not higher until bile acids reach 100 μmol/L. The study was a fantastic example of international cooperation into research of a rare disease. Unfortunately, confusion about what this… Read more »

Thank You ICP Care Community

ICP Care 501(c)(3) nonprofit is a volunteer-based charity raising Cholestasis of Pregnancy awareness and education with an evidenced based English and Spanish website that includes educational brochures for both patients and healthcare providers. Thank you to our wonderful ICP community on the Facebook Page and support groups creating a Facebook Fundraiser. Each of your Facebook Fundraisers… Read more »

ICP Community Voice at Healthcare Provider Conferences

ICP-COMMUNITY-VOICE-AT-HEALTHCARE-PROVIDER-CONFERENCES

Hilary Boyer and Donna Benavides at the 2018 ACOG Meeting. ICP Care’s volunteer based 501(c)(3) nonprofit charity is looking forward to attending several healthcare professional conferences and meetings in 2019. This month we will be at the SMFM’s (Society for Maternal-Fetal Medicine) 39th Annual Pregnancy Meeting from February 13 – 15, 2019. We are excited… Read more »

My ICP Story of Loss and Survival

ICP Story

Have you ever thought you were going crazy because of something your body is doing that no one else understands? That’s how Intrahepatic Cholestasis of Pregnancy (ICP) felt for me the first time. I read all the books. I talked to my mom and other trusted family members. I talked to my Air Force friends… Read more »