ICP Care Team Member

Amparo Healey Board Member
Sara-Jayne Carcerano
Family Support / Board Member
Amparo Healey Board Member
Family Support / Board Member
Sara-Jayne Carcerano

I am a mother to two toddlers who keep me busy during the day. My first pregnancy was free of complications and my son was born on his due date. 10 months later, I was pregnant with my daughter and expected the same experience. My pregnancy progressed well but at about 30 weeks I started experiencing URQ pain and brought it up to my midwife at my 32 week check up. She said it could be normal or an indication of certain conditions, cholestasis being one of them. However, the midwife quickly ruled it out because I wasn’t itchy. I had never heard of ICP before so I Googled it and felt relief thinking I didn’t have this condition. Anything that can result in your baby going Into distress and a risk of stillbirth is concerning. A few days later, I started feeling itchy and my thoughts were initially all over the place: “am I feeling itchy because I was just reading about this?”, “Is the itchiness intense enough?”, “… but what if I do have it?”. I knew that I needed to request to be tested at my 34 week appointment. On the way to this appointment, I received a cancellation notice but called to ask to see another midwife. This midwife didn’t take my symptoms seriously but I talked to another one who did and gave me the requisition. In the experiences and stories I had read, there seemed to be a common theme of people needing to advocate for themselves and their baby and I determined that I was going to do that too. I got the blood work and a few days later received a phone call saying that yes, I did have ICP.

I was now 35 weeks and was told to go immediately to the hospital to meet with an OB there, I was given a non-stress test, prescribed ursodiol and had my bile /liver function tested again. I continued to do this every 3-4 days until 37 weeks when I was induced. My little girl was born 14 hours after the induction and 14 hours after she was born we were discharged. I am so grateful that my little girl was born healthy! She was actually due the week the Covid-19 pandemic was declared so I was grateful to give birth early, while things were still mostly normal.

When my daughter was 8 months old I had a surprise pregnancy that unfortunately ended in a miscarriage at 8 weeks. I have become more aware of the challenges that can come with pregnancy and to not expect the same experience in subsequent pregnancies. I also have developed a better understanding of the stigma that comes with pregnancy loss.

Spreading awareness of ICP is something I feel is important because so many people (like I was) are unaware of this condition and because it is not a routine test, I feel that it is important that women, their partners and caregivers are aware of the signs and symptoms. I am excited to be a part of the ICP Care board to help further this mission.

Professionally, I have worked in family support for the past 11+ years, working in frontline positions and team lead/supervisory positions. I have a bachelor’s degree in Human Ecology, major in Family Studies, from the University of Alberta in Canada. I am looking forward to using my skills in supporting members of this group. Everyone’s experience with ICP is different and I feel that each person should feel validated and supported in their prenatal and postnatal experiences.