Damia Petrie
ICP Care Volunteer 2024-2026

My ICP journey began in May of 2024, when I woke up, at 33 weeks & 2 days pregnant, SO itchy. It was all over my body, including the palms of my hands. An hour & a half into my shift at work, I was so itchy I had claw marks on my arms and legs from scratching myself so much. Enter: google.

I googled “extremely itchy at 33 weeks pregnant”, & was greeted by articles about a condition called Intrahepatic Cholestasis of Pregnancy. I didn’t get too alarmed at first— until I saw that stillbirth was a common concern. I left work & went to the OB Eval department at my hospital. They immediately began running tests on my Liver Enzymes & my Bile Acids. By the end of the day, I was diagnosed with ICP.

The original plan, after I was discharged two days later, was to receive weekly ultrasounds to track my baby boy’s health & make sure that he was okay. Well, two weeks later exactly, when I was 35 weeks & 2 days pregnant, I could have sworn my water had broken. So, I went to the hospital. Apparently, my water had not broken. However, they did notice heart rate decels when they had my baby on the monitor. After a couple of hours, the decels had become pretty significant & they tested my bile acids again. They were even more elevated than they were when I was originally diagnosed, so due to that & the decels, they took my baby boy via C-Section later that night. Now, I’m an extremely proud momma to my sweet baby boy, Jace.

I decided to get involved with ICP Care because even though everything turned out okay, I still didn’t feel as if doctors knew enough about Cholestasis of Pregnancy to make informed decisions. For example, if I had not thought that my water had broken, it would have been 3 more days before my next ultrasound, & things could have been very bad for me & my baby. Imagining that is absolutely terrifying, so I decided that getting involved in spreading knowledge about this condition, that I had never even heard of until the day I was diagnosed, was a passion & a sort of calling for me.

I have a background in social media management & marketing and non profit experience here in Daphne, AL. I am excited to put my experience to use in spreading awareness of this scary, yet manageable (with the proper knowledge), condition.

Have you recently been diagnosed with ICP?

Would you like your personal experience, test results and medical treatment with this rare disease to further the advancement of science? Find out how your diagnosis can help through our Patient Registry.

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Have you recently been diagnosed with ICP?

Would you like your personal experience, test results and medical treatment with this rare disease to further the advancement of science? Find out how your diagnosis can help through our Patient Registry.