Our Impact
Our Impact

Our Mission is to Connect, Support, Empower and Educate All Affected by ICP

ICP Care is a 501(c)(3) nonprofit determined to help pregnant mothers who experience Intrahepatic Cholestasis of Pregnancy and to deliver healthy babies. ICP Care’s mission is to provide patient support and education, raise public awareness, support the advancement of research and improve health care practices. ICP Care helps to connect, support, educate and empower those affected by ICP – Intrahepatic Cholestasis of Pregnancy.

We do this by raising awareness of the condition, distributing educational materials for patients and medical professionals, and creating a supportive community for friends and families of anyone affected by ICP. We hope that, one day, all medical professionals and staff will know the proper protocol for treating Intrahepatic Cholestasis of Pregnancy, resulting in less suffering and healthier ICP babies.

ICP Care 501c3 nonprofit is here to be a voice of support and education to all who are faced with Intrahepatic Cholestasis of Pregnancy.

Creating an Impact

Today, the website receives over 300,000 visitors each year from all over the world and manages a volunteer network. Additionally, ICP Care is active at medical conferences and on social media educating and increasing awareness, as well as collaborating organizations and launching the 2023 ICP patient registry. This will allow ICP Care to collect a large population of patients with Intrahepatic Cholestasis of Pregnancy in order to partner with researchers to study optimal treatment and prevent complications such as stillbirth.

Education & Advocacy

ICP Care represents all of the ICP Care Community members yearly to be the voice of each person experiencing Cholestasis of Pregnancy. Our educational booth provides Healthcare Provider brochures and materials with the research-based information to help them recognize the symptoms of ICP, diagnose the condition, and treat and manage an ICP pregnancy. Each year more healthcare providers are becoming aware of ICP Care 501(c)(3) nonprofit by attending these healthcare professionals events including Maternal Fetal Medicine specialist, OBGYN, Nurses , Midwives and other physicians to learn of our patient advocacy support and educational resources in both English and Spanish to offer their patients.

2024

Association of Maternal and Child Health Programs

The Association of Maternal & Child Health Programs

 

Aireen Turner ICP Care Ambassador and Donna Benavides, Executive Director / Founder speaking to directors of maternal and child health programs, public health leaders who work with and support state maternal and child health programs, to improve the health of women, children, youth and families.
Three days at the ICP Care booth distributing evidence-based educational materials and spreading awareness of Intrahepatic Cholestasis of Pregnancy (ICP)!

2023

 Cholestasis of Pregnancy

October 1, 2023

026.64

International Classification of Diseases

Intrahepatic Cholestasis of Pregnancy has an official ICD-10 diagnosis

 
ICP Care and American College of Obstetricians and Gynecologists – ACOG successfully petitioned the CDC to update the ICD-10 coding system that doctors use in medical charts. Prior to this, Cholestasis of Pregnancy was simply diagnosed as “Liver condition in pregnancy”. We are pleased to announce as of October 1, 2023 patient’s medical charts can now represent an accurate diagnosis of Intrahepatic Cholestasis of Pregnancy!! We hope this leads to better life-long care for patients as well as the ability to further research into the disorder.

ICP Care

Patient

Registry

March 2023 Launched International ICP Patient Registry

The registry is an online collection of information submitted by patients who have had a pregnancy affected by Intrahepatic Cholestasis of Pregnancy. This will allow the collection of a large population of patients with this disorder in order to partner with researchers to study optimal treatment and prevent complications such as stillbirth.

Strength can be found in numbers. Cholestasis of Pregnancy (ICP) is a rare disorder and we need your voice in our Patient Registry to help researchers improve understanding and treatment of this disease. Add your voice to be the change for the future of ICP care.  There are detailed questions and the registry platform here https://icpcare.org/icp-community/patient-registry

The Society for Maternal Fetal Medicine’s 43rd Annual Pregnancy

ICP Care Board Members Donna Benavides, Amparo Healey and Dr. Laura Bonebrake at The Society for Maternal Fetal Medicine’s 43rd Annual Pregnancy Meeting speaking to Maternal Fetal Medicine specialists and distributing ICP educational brochures. The ICP Patient registry QR code cards were distributed to invite the MFMs patients to participate.

Pictured left: Medical Advisory Committee member Dr. Jonathan K. Mays, board-certified maternal-fetal medicine specialist and ICP Care Founder / Executive Director, Donna Benavides

Capitol Hill Advocacy ICP Care

Capitol Hill Advocacy

Board members Donna Benavides, Kaitlan Terry, Yvonne Casuso and Elisabeth Naff shared their Cholestasis of Pregnancy story on Capitol Hill in Washington DC. to state representatives to improve and implement positive changes to the lives of people with liver disease and all organ transplant patients.

The experience was Inspiring, emotional and supportive together as we met advocates with chronic liver disease to liver transplant survivors! Thankful for the A3 Experience granting our team a scholarship to attend by Global Liver Institute.

Downloaded Brochures

Educational Brochure Downloads

More than 6000 Educational Brochures downloaded for patients and healthcare providers.

2022

American Association Study of Liver Diseases 2022

AASLD American Association for the Study of Liver Diseases

After two long years, as the pandemic stopped all events, we were excited to represent the cause and the ICP Care Community members again at the in person conference. We were thrilled to have a booth presence at the AASLD The Liver meeting speaking to hepatologists and other specialized physicians and distributing evidence-based educational materials about ICP After Pregnancy. We met and spoke to other rare liver disease organizations attending this conference. Dr. Laura Bonebrake, Medical Advisory Board OBGYN / Board Member and Donna Benavides, Executive Director / Founder pictured at the ICP Care booth.

From Our ICP Care Community and Shared Pregnancy Stories

“Because of this community and the ICP Care website, I was able to advocate for myself and my baby by educating myself and staying up to date on the latest research and recommendations in the scientific obstetric world.”

~Angelina

“If it had not been for the ICP Care website and Facebook groups I would have felt even more lost and alone. I am eternally grateful for the nurse practitioner who raised a red flag, to those who manage the ICP Care website and to the moderators and members of the ICP Care Facebook group.”

~Amelia

“The ICP Care website and support group on Facebook was absolutely wonderful to have. It made me feel less alone knowing that there are other women out there who know and understand exactly how you feel, and know every fear and discomfort you feel.”

~Erika

2020

SMFM 2020 Annual Pregnancy Meeting

The Society for Maternal Fetal Medicine’s 40th Annual Pregnancy Meeting speaking to MFMs

ICP Care Board Members Donna Benavides, Hilary Boyer, and Amparo Healey at The Society for Maternal Fetal Medicine’s 40th Annual Pregnancy Meeting speaking to Maternal Fetal Medicine specialists about Intrahepatic Cholestasis of Pregnancy and distributing ICP educational infographics and brochures.

Your support and donations make attending conferences like this possible. Thank you from the ICP Care family!

SMFM 2020 Annual Pregnancy Meeting

ICP (Intrahepatic Cholestasis of Pregnancy) has been added to Michigan State University’s Maternal 911 Modules for the Maternal Safety Program!

ICP Care collaborated with the Maternal 911 program to add ICP (Intrahepatic Cholestasis of Pregnancy) to Michigan State University’s Maternal 911 Modules for Maternal Safety Program!

ICP Care 501(c)(3) volunteer team members work hard for the addition of ICP to healthcare educational materials and programs like this one.

Visit: Maternal911

 

2019

AWHONN (Association of Women’s Health, Obstetric and Neonatal Nurses)

ICP Care was so happy to attend the AWHONN in Atlanta to speak to Obstetrics and Neonatal Nurses.

Donna Benavides (ICP Care Founder) and Katie Stanley (volunteer ICP mom) at our booth. Educational healthcare provider brochures were distributed to help further educate these healthcare professionals about Intrahepatic Cholestasis of Pregnancy.

ACOG National Meeting 2019

ACOG American College of Obstetricians and Gynecologists – ACOG Annual and Clinical

Donna Benavides (Founder) and Amparo Healey (Volunteer Manager) pictured at the ICP Care booth for the The American College of Obstetricians and Gynecologists – ACOG National Meeting in Nashville.

SMFM (Society for Maternal Fetal Medicine 39th annual Pregnancy Meeting!

Hilary Boyer and Donna Benavides at the 39th annual SMFM Pregnancy Meeting! We loved speaking to the Maternal Fetal Medicine specialists.

ICP Care community of supporters’ donations and participation in our events, provide us with the funds to attend conferences like this. Having an ICP Care booth at medical events, helps us spread awareness of ICP among the medical community.

ACNM Annual Meeting 2019

ACNM 64th Annual Meeting

The ACNM 64th Annual Meeting (American College of Nurse-Midwives) in Washington, DC.

Donna Benavides Founder of ICP Care speaking to Certified Nurse Midwives and distributing evidence-based ICP educational materials.

2018

AWHONN Convention 2018

AWHONN – The Association of Women’s Health, Obstetric and Neonatal Nurses convention in Tampa, FL

In Tampa, FL. at the ICP Care booth with Donna Benavides (ICP Care Founder) and Kimberly McGrain Lasher (ICP Care Volunteer). This conference gave us the opportunity to distribute Intrahepatic Cholestasis of Pregnancy educational materials, spread education and connect with Obstetrics and Neonatal Nurses.

 

ACNM Annual Meeting 2018

ACNM (American College of Nurse-Midwives) Annual Meeting

In Savannah, Georgia Donna Benavides and Amparo Healey attended the ACNM conference. We were pleased to speak with so many nurse midwives in addition to spreading evidence-based education and distributing Intrahepatic Cholestasis of Pregnancy educational brochures and infographics.

ACOG National Meeting 2018

The American College of Obstetricians and Gynecologists – ACOG National Meeting in Austin

Hilary Boyer and Donna Benavides worked the ICP Care booth at The American College of Obstetricians and Gynecologists – ACOG National Meeting in Austin. We had the pleasure of speaking and meeting OBs about Intrahepatic Cholestasis of Pregnancy. We distributed educational materials and connected with Obstetrics physicians.

2016 – 2024

ICP Care’s impact has over 58K views with Educational Videos, ICP Warrior Stories and Microlearning Videos for patients and healthcare providers.