Friends & Affiliates
intraheptic cholestasis of pregnancy friends affiliates resources
Resource for ICP families

Maternal 911 online multi-module course designed to provide updated education to all health care providers working at the bedside of a pregnant woman. Continuing Medical Education credits will be awarded upon successful completion of the modules and simulation drills from Michigan State University College of Human Medicine.

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Group B Strep International  The mission of Group B Strep International (GBSI) is to promote international awareness and prevention of Group B Strep disease in babies before birth through early infancy.

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American Pregnancy Association is a national health organization committed to promoting pregnancy wellness through education, support, advocacy, and community awareness.

Resource for ICP families

The American Liver Foundation is a non-profit organization that promotes liver health and disease prevention. The mission of the ALF is to facilitate, advocate and promote education, support and research for the prevention, treatment, and cure of liver disease.

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Count the Kicks  Count the Kicks is a project of Healthy Birth Day, Inc., a 501(c)(3) organization dedicated to the prevention of stillbirth and infant death.

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Project Alive and Kicking  is a 501(c)(3) Nonprofit Foundation to empower expectant mothers by educating them about healthy pregnancies, fostering an awareness of their babies’ daily fetal movements, and the action they can take to help their babies come into the world thriving, alive and kicking.

Resource for ICP families

 Expecting Health  Born from Genetic Alliance, a nonprofit organization rooted in 33 years of community programs and representing national voices and family-centered experiences, Expecting Health shares science-based and policy-informed information that reflects the lived experiences of individuals and their families. We do this through the power of relationships; convening the top experts; working with key leaders in health; and engaging with families and communities at the center of the conversation.

PSC Partners Seeking a Cure - ICP Care

The mission of PSC Partners Seeking a Cure is to drive research to identify treatments and a cure for primary sclerosing cholangitis (PSC) while providing education and support for those impacted by this rare disease.

If you need a description of PSC, “Primary Sclerosing Cholangitis (PSC) is a rare liver disease that damages the bile ducts inside and outside the liver. With PSC, bile ducts become inflamed, and the inflammation leads to scarring and narrowing of the affected ducts. As the scarring blocks more and more ducts, bile becomes trapped in the liver. This damages the liver and can result in fibrosis and cirrhosis of the liver and liver failure. There are no treatments to slow down disease progression. Patients may eventually require a liver transplant.

Global Liver Institute

Global Liver Institute (GLI) is a patient-driven 501(c)3 nonprofit organization headquartered in Washington, DC, with offices in the EU and UK, founded in the belief that liver health must take its place on the global public health agenda commensurate with the prevalence and impact of liver disease and the importance of liver health to well-being.

GLI promotes innovation, encourages collaboration, and supports the scaling of optimal approaches to improve research, care, and policy. By bringing together more than 200 community-based, national, and international organizations across its Councils, Campaigns, and events, GLI equips advocates to identify and solve the problems that matter to liver patients.

Global Advocacy Alliance - ICP Care

Global Genes is dedicated to creating a globally connected community committed to eliminating the challenges of rare disease. Together with
our partners, we help people build and find communities, gain access to information and resources, and provide hope for the more than 400
million people affected by rare disease around the globe.

International Stillbirth Alliance

ISA’s mission is to raise awareness and promote global collaboration for the prevention of stillbirth and newborn death and provision of appropriate respectful care for all those affected.